Thursday, November 25, 2010

Thankfulness.

I had to have a mini-breakdown last week - the emotion from Jake's CF hitting us in the face with this nasty bacteria in his lungs was too much. I'm thankful to have a ton of support right now: Matt and I are going to "family therapy" weekly with a woman I think is fantastic (though we may go to biweekly soon - it's a big time commitment and a week passes in an eyeblink), and I had enough flex in my schedule to have a couple of nonproductive days. Still, I'm struggling to keep up with work right now, and to define work in a way that helps us make our financial goals, yet allows me the time and energy to be a good parent to my little guy here - and he requires a lot of time and energy. Not to mention my daughter! Sometimes I think she's too self-sufficient.

Yesterday it was about fifteen degrees, but Jake wanted to pick outside for a bit. At first I sent him out with long johns, snow pants, his parka, and a hat - and made sure to put his thumbs through the holes in the fingerless fleece gloves that are built into his parka. After a while of walking around outside myself with Burke, I realized that Jake must be freezing. I went inside and got out his thick, double-layered merino wool hood. I bought four of these hoods when we first moved up here. They have one opening for the face and are made of the thickest, softest gray wool ever. As I took off his hat and tenderly pulled the hood over his head, I felt a surge of protectiveness. I need to protect him, enshroud him, allow him to do what he wants but protect him from his lack of knowledge about even his own needs. I wonder if he would just stay out until hypothermia set in, too bent on picking the plants. I know he has, before, stayed out until he's uncomfortable, then come in crying about his hands being cold. So I struggled to put glove liners on over his fingers. It takes several tries because he doesn't get the idea of spreading out his fingers and fitting one in each finger-sleeve, at all. These glove liners have pockets for handwarmer packets, and he can still pick his precious grass while wearing them. I pulled the fingerless fleece back over his hands, easing his gloved thumbs through the holes, one at a time, gently. Then I pulled his parka hood over the thick gray wool, zipping it under his chin.

He even went on the swing for a bit, pumping his legs, through the twenty-mile-an-hour gusts, just experiencing wind and sun and frozen tundra. To me, I go outside and feel the blast of wickedly cold air and get angry - it's cold; I want to run and hike; I can't because I will freeze to death. He doesn't. He just experiences it all, one moment at a time, without judgment or interpretation. A gift for which I am grateful today.

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  2. Lauren, I just found your blog while looking for homesteading blogs, and then noticed the word "autist." My 20 year old son is moderately mentally retarded with autistic tendencies. I very much related to some of the things you were saying about your son. My son will be freezing, shivering and teeth chattering, yet if you ask him if he is cold he will say "I'm not sure." Or he will insist he is hot, not cold, and needs to cool off. Thank you for sharing your precious boy's story. It meant a lot to me.

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