Snow for dinner!

Jake's been doing great lately, although he has an infrequent cough that gives my heart a little flutter whenever I hear it. On May 11 we have his annual labwork, including glucose tolerance test (for which we are substituting him downing 2 cans of Coke at 9 am for that icky orange or grape stuff he had to drink last year - and didn't quite finish), chest X-ray (details of how we will get this child to stand still are TBD and on my list to investigate/bring up), throat culture (cooperation has been difficult as of late, and this is an important component of his care), and, to top it all off - after CF clinic we head to the optometrist for an eye exam! Yippee!

We just got back from visiting family in Florida, and Jake's having a bit of the withies from the sun, sand and swimming. He absolutely loved swimming in the ocean, and once I said, "We're swimming in the ocean!" it became his little mantra, "Swimming - in the OCEAN!" He watched Katie bodysurfing and tried it himself. Once when completely bowled over by a wave, he stood up and in the cutest, most natural voice ever, said, "Oh my GAHD!" It was completely adorable.

He's a little brown berry now, but so sad - especially since we came back to a huge whopper of a snowstorm - 14 inches and then some. He kept tasting snowflakes at school and saying, "Oh no, it's snowing!" and "Snow for dinner!" Then at home he was all about, "No! Snow!"

That's another cute development of late: he loves to say, at the top of his lungs, "No no no no no no no!" in various inflections and rhythm patterns. I have taken to mimicking the inflection and pattern and responding with "Yes yes yes yes yes yes yes!" and he just loves it. To the point that he'll go back and forth like that for hours if I could stand it. Last night it was adorable until I could take no more.

Overall? He's thriving. There are a few little things that I need to iron out - he has had a slight increase in meltdowns, I need to order a $100 bottle of Lyme herbal tincture (ouch, and I wanted to make it myself, but have had a hard time lately finding any time to do anything!) and I need to restart probiotics. But he's a sweet, healthy little guy who's loving life for the most part!